Sunday, 11 April 2010

Update and loads more

/ camera/ radiotherapy/ ct scans/mri scan on liver and pelvis/

Firstly, my last two blogs did not publish due to technical difficulties with the main server. So this entry incorporates the last two blogs as well.

I have been told off (LOL) for not mentioning in my blog that one of my Sisters in Law came to visit Norma and I for a few days, well she must have emptied Primark, Sheila also ate all my Bickies. It was good to see her.

My Sister and Brother in Law are over from the Isle of Man and we are going down to Chester to stay with them, last night we had a very nice meal at Bem Brazil in Manchester good company.( we stayed with Lynn &  George and had a really nice time, boat trip, chippy tea and good company ) http://www.bembrasilrestaurants.com/

Moving on to the issue with my cancer. I have always written this blog openly and honestly, the reason for this is due to my wanting to put my story across in a language that I and I hope others who follow understand, so many web sites can scare people and be full of scary stuff, I am just tryig to write this as it is. With that in mind, I have below included my Colonoscopy Report, it has a bit of jargon and I have added a couple of links to try to explain fully what is going on, I hope this helps you who follow.

My MRI scan has been brought forward to the 9th at the Christie, also the instructions and gloop that I have to drink has arrived for my Colonoscopy. My God, I will be floating with all I have to get down and through me. Not allowed to be far from the toilet for hours / days, bet I lose a fair bit of weight. LOL :o) http://en.wikipedia.org/wiki/Colonoscopy

Well I can now update you on the last paragraph; 


I have been assessed for Radiotherapy, this is now planned to start this coming Tuesday at 3:00 it was planned for Monday but has been put back a day, we can only guess why and that guess comes from the evididence is based on the outcome of my Colonoscope which reads thus;

________________________________________________________________________________

Report


"The colonoscope was inserted via the anus to the caecum, which was identified positively by the ileocecal valve and the appendicular orifice. RECTAL TUMOUR HAS RESPONDED WELL TO CHEMOTHERAPY AND IS NOW A SHALLOW SCARRED AREA AT 10CMS FROM THE ANAL MARGIN FOR SOME 8CMS. ILEOCAECAL VALVE LOOKS ODD (BIOPSIED). HE HAS A FLAT CARPETING ADENOMA IN THE CAECAL POLE BEYOND THE ILEOCAL VALVE, THE TRUE EXTENT OF THIS IS UNCLEAR AS IT IS PARTIALLY OBSCURED BY THE ILEOCAECAL VALVE"


Diagnosis.


Colonic Polyps.  http://en.wikipedia.org/wiki/Colonic_polyps


Follow up.


Awaiting pathology results.


Advice/comments.


TO DISCUSS WITH MR X (my surgeon)? WILL THIS ALTER THE PLAN. HISTOLOGY SENT URGENTLY.

______________________________________________________________________________

So after reading that what do I think, well to me it looks like the immediate threat of my Colon Cancer has receded  but that the polyps should if dangerous to my health be removed, also that I may have the scar tissue removed. The area's are in quite different ends of my colon passage.

50% of my liver is to be removed, this has never been in doubt from the beginning,  the pelvic area operation  will only be decided on once they have opened me up, as the lymph nodes have calcified. this is only an outside chance of being operated on.

So this coming week;

Monday, my Cancer crew have a meeting to discuss the way forward.

Tuesday, unless I am told different, I start my radiotherapy in the afternoon (3:00pm The Christie)

Wednesday, Thursday, as Tuesday.

Friday will see the last of my current course of radiotherapy but I am also booked .in for my pre-opp meeting at the same time as my radiotherapy. this is in the NMGH some 10 miles away from The Christie. I must change this appointment, perhaps to earlier in the day if it can be arranged.

Then the following week is the operation.

So far I have been working and I would like to thank everyone for getting me to this point, from the top to the bottom of the organisation I have been supported. If all goes to plan I have possibly done my last full week at work but still plan to do as much as I possibly can. I will try to keep up my 8 hour day till the day I am admitted.

Traa dy liooar, Cha nel un çhangey dy liooar rieau. LOL:o)


Smile a Mile all, Smile a Mile :o)

2 comments:

calkew27 said...

Hi Ade
Sandra Caley here, just to let you know I'm with you all the way. I have had a vicious cancer that has robbed me of my anus large bowel large part of small bowel, part of stomach. eousophagus,Therefor now I have an iliostomy and am tube fed and don't eat food, I drink small quantities, and take hundreds of tablets, have had a nervous breakdown and therefor take medication for that. Ian has been amazing I have spent 3 long spells in hospital at 7 months + 5 months and 6 months+, I find it difficult to sit on my btm. and I have been MRSA+ for 7 years. But I hide behind a mask of make up, nice clothes (try and forget the 'accidents 'with the iliostomy) and laughter and jokes. I am now losing the feeling in my left arm as I had an accident in 1986 which damaged my spine and I have severe arthritis in my neck and middle/lower spine, I use a stick to walk and a wheelchair and scooter to get around, and if anyone asks me how I am I always say 'fine...how are you?' which makes Ian really mad, but truly do these people want to stand for 20minutes and listen to MY medical problems? Yes it gets me down and trully pees me off but what can I do?....nothing. I just keep going for my hosp appointments,keep taking my morphine (i also have fentynal morphine patches on my back)I often say to Ian I wish I had never had this done etc but he just says 'you had no choice'. Sorry its so long and I hope it has come over positive Ade, its meant to lift you, I'm sorry for the trouble you are going through, I will read about how you are managing with it, and I hope you don't see this letter as anything other than 'my story',(((huggs))) to you Ade from San x

pete said...

Hi Adrian,
It's Pete again, just read your latest post and it seems you're all set for your surgery as planned.
I just wanted to let you know I'm thinking of you daily even though you're a Red and to tell you that, numb feet/legs/hands notwithstanding, the Sunday before last I climbed Pendle Hill, and yesterday Holcombe Hill. 6 months ago I would have thought this impossible so carry on with your positive attitude and never say never.
Reading Sandra's comment was very humbling, her problems make mine look trivial, and yet she still has the selflessness (is that a word?) to write and support you. Awesome

All my very best wishes

Pete ( and Chris of course)