I'am in hospital again, 17/07/10.
Norma has written the below from a diary she has kept. I do not remember the half of it. Up-Dates soon.
Nice day today (would say a normal day but not sure what normal is any more !!) Dim Sum for Tea.
All the promised backup/help came into place today! Support Worker Team Leader did a final check on what equipment we needed and is going to arrange it for us she also outlined the help her team will provide. The District Nurse called got herself up to date with what Adrian had been through and set the time table for her team. The time table will be - Support Workers 2 vists per day and thedrian District Nurses Monday, Wednesday and Friday.
Adrian rang at 9.45 to say he was being discharged. At 2.00pm I hadn't heard anything so at 2.15 I rang the ward and was told he would be ready in an hour. Got the the Hospital at 3.30 but was still waiting at 4.30 ( how can it take nearly 7 hours to discharge a patient !) I was shocked to see that he still had the same dressings on that were there when I dropped him off yesterday, not very hygienic !!!
Ms Shetty had another word with the Nurses, she is going to speak to Mr Sherlock regarding discharging Adrian tomorrow. I am worried as another wound started leaking and it didnt have a dressing on, I had to improvise. Adrian seems to be eating better but does seem to be very tired.
Ms Shetty was very angry that the nurses had cancelled every thing and stopped Adrian from being discharged tomorrow. He point was that if he was so ill they should have called a doctor, and the blood pressure machine was faulty ! I got to bring Adrian home for the night but had to get him back for 8 am.
Took Adrian back to the ward in time for the ward round. The nurses think there is poo in the wound discharge which would mean a leak from hiw bowel ( very serious) also his blood pressure is very low so they have decided he can't come home never mind be discharged. He is so angry !! I have asked to see one of the senior doctors tomorrow to find out exacty whats happening.
What a day ! at least we know we can cope - his right hand wound burst and the dressing couldn't cope so we had to use a stoma bag !
Adrian came home for the week-end and we did the garden.
Gave Adrian the moisturising treatment today before I took him back to the hospital for 11.30, I went in to work for the afternoon and collected him at 6.00pm.
The Doctor said Adrian needed a blood transfusion but in the end he didn't need one ! Got a lesson in stoma care and Adrian was allowed home for the night. Edward came down and helped move the bed downstairs. We coped well I think.
Adrian seems ok today Ms Shetty says perhaps he can come home on Monday.He still has a drain in and I really do thinks we need to know whats causing the discharges and stop them rather than cope with them ! BUT I'm not a doctor.
Received an email to say Adrian can come home on Friday so I have arranged to have Friday and the next two weeks off work as holiday. He had a scan which showed an collection of puss so they put a tube in, so Friday could be off. Adrian was told to walk around to help clear the pelvic area but on the positive side she didn't prescribe anti-biotics.
The equipment Adrian will need when he comes home was delivered today. He has a CT scan booked for tomorrow. The Physio is also going to try him on stairs.
Adrian allowed home from 12 to 8 today
Lynn and George called on their way to France on holiday. Adrian was home from 12.30 to 8 he stood up on his own and walked to the bathroom. What a difference a week makes.
Got a Wheelchair from the Red Cross today which gives us more freedom coming and going to the hospital.
Lynn and George called they are going on holiday tomorrow. Adrian seems much better in himself.
The Occupational therapist called to the house today to asses things and see what we need for when Adrian comes home. She is going to order a special chair. Adrian needs potassium every day.
They let Adrian out for the afternoon so we went to Pennington Flash and fed the ducks. Had McDonalds for tea !
Brought Adrian home for the afternoon he seems a bit more mobile than he did on Sunday ! Had to get Kenny to help me get him to the car.
They let me bring Adrian home for the afternoon picked him up at 1 and took him back at 8 pm. Had to get Paul and Jamie to help me get him out of the chair and into the car as he is so weak.
Adrian walked to the bathroom and have a shave on his own. We got to go into the hospital rose garden, the first time he has left the hospital building for 8 weeks !!!
Adrian had beens ick before I got there for afternoon visiting. He is very unhappy feeling very sick and not wanting to speak only sleep.(Memory of week 1 when it all went wrong ) need to keep positive 2 steps forward 1 back = 1 forward.
Bought a dongle today so the Adrian can use the Lap top. He's very chirpy today on Facebook and sending emails.He had some cherries today , they went straight through him so they are going on the list of things not to eat.
Adrian still eating, Had all his dressings changes today looking ok. Passed some blood but the nurse said it was the infection clearing and nothing to worry about. Adrian wants his Lap top as " he needs contact with the outside world"
Adrian so much beeter today. Eating more and seems hungey. The took the drain from his bum toda as Christian says all it is doing is making him uncomfortable.
Adrian saw the consultant today and he said Ade had turned the corner and they are happy that he doesn't need another Operation. Adrian is quite chirpy today but his nurse thinks he ill still be in for about another month !
Adrian is still depressed, perhaps once he knows if he needs another operation he will feel better.
Spoke to Adrian this morning and he gave me a shopping list. But not very receptive when I got there this afternoon.
Adrian seemed a bit better this afternoon they have told him that if his temperature doesn't stabilise he will have to have another operation to clean out his pelvic area.
Another CT scan today which showed still more infection. He got very distressed asking them to leave it till tomorrow as they wanted to put another drain in. "We" managed to convince him to let the drain go in. When he came out he was as high as a kite and had everyone singing "The Frog Song" what a man.
Christian got the scan results and they decided to put a catheta in his bum and a drain in his tummy, the catheta worked so well they didn't need to put the drain in his tummy.Adrian had a "Turn" burning up then freezing cold and shaking. Stephen in the bed opposite realised what was happening and got the nurse who sorted things.
I went bak to work (mornings only) Adrian is still very down, he went for a CT scan at 6pm but it was broken, during visiting they repaired it so took him down again ! I hate these things as every time they scan him they seem to find something else !!!!
Visited at 2pm today as Richard and Kyle are going home. Alan and Bounta visited his at 3 just as we were leaving, It was strange leaving him with someone else. While we were talking it came out the Adrian didn't realise he has had 2 operations.
Adrian seemed a bit better this afternoon he had shaved and washed his hair. This evening he was very snappy, its like a helter skelter !!!!
Adrian was very down today the nurse thinks its because he is getting better and is starting to realise whats happened to him.
Gary and Paul visited today with a card and goodies. Richard and Kyle came today he was so pleased to see them. He is still a bit down and demanding to go to the Alex.so I've spoken to Debbie who is going to tell him why he needs to be in North Manchester General.
Mailed Debbie today asking to make me an appointment with Mr Sherlock so that I could find out what happened last saturday. Spoke to Christian who assuered me that verything is ok and that what they found last saturday was only post op fluid so didn't need flushing and that he was pleased with Adrian's progress.But he still has a long way to go there are small pockets of infection but not large enough to put a drain in.
Adrian still very emotional but cares about his appearance. He walked half the lenght of the ward. They gave him a nebuliser as they think his chest is crackling.
Adrian was quite perky today, back-chatting with the Physio, but she gave as good as she got which is good. He asked for exercises for his upper-arm he has also started to ask for food from home.
Spoke to Debbie about what happened at the week-end, she said the "Team" didn't know anything about it so she is going to investigate ! The Vac dressing has been removed and there is now a pack dressing. Took Adrian his mobile is so he can keep in touch.
Adrian very anxious as he is expecting more pain when he has the enema managed to calm him down I think. They are having a meeting about him tomorrow.
Adrin's scan showed a "Well" of infection a 2nd registrar realised that it was in his rectum and wouldn't clear so he decided to clear it, no anaesthetic, no removal of stitches, the pain he was in was excruciating !! They are going to give an enema tomorrow.
Lynn and George came today Adrian was pleased to see them. He was moved to B5 today and had a CT scan at 6pm My heart stops when he has these as heaven knows what they will find.Adrian has a Kebab for his tea !!! The Surgeons had a round today and were very pleased with him.
Adrian was out of bed and in PJ's rather than a Gown. The guy in the next bed had a Roast Pork dinner so Adrian had one and enjoyed it. He stood up today with a frame and got himself in and out of bed. No bed on B5 so maybe tomorrow
The Sister thinks she will move Adrian to B5 tomorrow and will get Outreach Nurses to visit him regularly. Emotionally he's still not to good.
Adrian still making progress they are talking about him going to a main ward soon.
Adrian much better today he got the nurse to ring me and ask me to bring his DSLite ! They have added Crisps, flat fizzy drinks and bananas to his diet for potassium and salt. The Sister knew nothing about another scan.
Adrian saw the Doctor today his new drain has come out and she wants to do a scan and then put it back !!
The Doctor came round today and left Adrian feeling very sore. They got him out of bed today
Adrian was having some clips out today. The head of ICU came and spent some time with him and explained that how he was feeling is normal for someone who has gone through as much as he has.
Adrian is very very emotional I did him fillet steak in tomato for his tea and he ate it so he is at least eating again.
His scan showed a collection of infection so he had another drain put in which has left he depressed again. Spoke to Lynne Faulds - Wood today ( from Lynns Bowel Cancer Charity) what a fantastic lady so patient and understanding. She listened to everything that has happened and offered to help in anyway she can.
We had a meeting with Debbie and the Sister in HDU who all Adrians Treatment/Tests/Results. Adrian is now fighting people and things rather than just letting it happen.Adrina is getting a blood transfusion he also had a scan today AND Chips for Tea.
Adrian has a good nights sleep, Met Julie the Stoma nurse and will meet her again on Wednesday she is going to get an update from a doctor. Adrian was very tired but the nurses say he has had a rough day but is ok.
I rang the hospital at 7.15 and Adrian has had a good night, he sent a message with a request for his lunch. He seems more mobile and less bloated, They have taken blood samples for analysis. He has Ice Lolly mania !!
Adrian is down as no time scale for anything, so nothing to aim for.
Adrian out of bed this afternoon but is so sore when they move him I could cry. He is so unsure that we will manage when he comes home (of course we can) His body swelling seems to be going down. He saw Mr Sherlock this morning to discuss his diet.
Adrian was out of bed when I got there at 2.00pm and stayed up till 6.30. He had a roast pork dinner ! He was very tired by 7.45 so I left early.
Adrian was depressed today they have just told him that his stoma will be permanent ! He was insisting on moving to the Alex, Mr Sherlock called to see him and convinced him he has to stay in the North Manchester, he seems to have accepted this. I saw all his scars and bags today (think they were testing me)
Adrian was moved to HDU today his fluid retention is really improving. Lynn went home today.
Adrian out of bed again today. His fluid retention seems to be improving.
Adrian was sitting in a chair today, this evening he demanded that the Doctor sorted out his morphine as "it was his life they were dealing with !" Good to see him fighting.
Richard and Lynn have arrive from the IOM to see Adrian. Hewas in an induced coma when we arrived. They say it will probably last 24/48 hours. At 2.30 I got a call from the hospital to say he had woken up naturally. So we went back to the hospital to see him - What a Man !!
I got a phone call at 8 am this morning on my way to work to say I should go to the hospital as Adrian needed an emergency 2nd operation as his bowel was blocked and they needed to remove some more. He went to theatre at 11.30 am. I got a call at 1 am to say he was in ICU and stable.
Adrian still not happy says he is in pain and sleeping a lot.
Adrian on morphine for the pain.
Adrian moved back to B5, he is still anxious but that could be the morphine.
Adrian still in HDU and quite distressed.
Adrian in HDU
Adrian's operation today, they took him to HDU afterwards as per normal.